Prematurity.
All of the girls issues are boiled down to prematurity. Their pediatrician spent about a hour with Beka alone doing neurological testing and such and about forty minutes with Atty.
Although many of the concerns each specialist has shared with us could be , nothing can be determined until the girls are clinically 6 months old and for them that will be when they are actually 8 months old per the pediatrician.
Many of the issues could be ruled out immediately by invasive testing like sedation to do EEG's and MRI's, however, for now we, as in her parents (yeah we actually have a say in our kiddos care!) have chosen to do some therapies and work with developmental specialist to provide the girls with everything they need.
What made us make this decision...
1. They are here. They are wonderful little beings who filled our lives and family and heart with love, they look to use with same unconditional love we have for them. We will love them no matter what they have, how they grow or what they will require in their lives. The key word here is unconditional love, and learning to love what you have not what you want. We are spending too much money and not getting answers and are understanding is that there will not be any answers until they are closer to 6 months old...so why waste our time that we can spend with them chasing our tails.
2. Other than cancer, and prematurity of retina, nothing can be done until they are 6 months anyway. If there was a palsy, other than PT they wouldn't introduce anything to her medically unless the conditions brought on other health issues.
3. Many of the conditions they could have, if they do have, can't be fixed, cured or ignored, so we will just learn to love our children as the Lord planned them to be with all their oddities and particular demands and deal with the medical as it all unfolds.
4. Tom is weird, I am even weirder so why would we think our biological children would be anything remotely resembling normal. Honestly, you should meet us.
5. With the economy like it is, trying to solve the puzzles that our children present should keep a handful of providers and medical facilities at least running so we thought we should spread the love out over a 6 month period.
6. Last and not least, I really want to spend one week just loving on my babies all three of them for everything they are with no appointments and running around. We need some heavy bonding that we for some reason, especially I keep getting interrupted with the notion is of crisis that I feel the need to fix immediately. I really hate OCD.
Oh yeah, in the chaos of all the appointments and illness and now reactions to shots...our deck caught on fire!
Got the call in the pediatricians office that the fire truck and fire Marshall is at our house , needs to talk to us.
But today was still a stellar day, the good news, the damage ~ it isn't that bad in the great scheme of things, again if I focus on the appearance not the functionality of the damage it is bad but really it isn't that bad. No body was hurt, our house was untouched, we obviously have very good neighbors and attentive ones too!
Beka probably isn't going to die soon of some rare neurological aliment,she more than likely will be able to over come most of her delays right now, she doesn't have a serious cold or pneumonia , just some bronchial spasms with sinus congestion, handling her shots fairly well.
Atty, our other daughter other than growing scrawny due to her length and poor eating is doing amazing , the Reglan has been stopped since she has became insomnic and irritable from it so this is good for her and us, the one nedication that casues horrible side effects also has been stopped so that puts my mind at ease.
And our eldest daughter Anneleise had a great day with lots of friends to play with and outings all day. She laughed all evening. And after everything she was still herself...the gift she is.
And thanks to all the drama, all the realities that didn't come true...I'm going to bed with very clear realization that I am blessed, very blessed, actually down right lucky to have the life that I have even if some days it is too much for me to handle.