Have I mentioned?

That this sweet child that we prayed for, that we love to through and through, that I would go to the ends of the earth for...

Is a undercover Troll, who lives under a bridge.

Today is one of those days, her day...and everyone is goin' to know it!

Update.

We went.
It snowed.
We shoveled.
It's negative.
We shoveled.
We are feeling half full and half empty.
It snowed.
We shoveled.
We are going to an infectious control doctor.
It's snowing.
We are shoveling.
We are seeing an oncologist in two weeks.
It's going to snow more.
We are going to be shoveling for at least a while.

Guess I should be praying.
I don't think I ever felt so much like "why bother..."
Did I mention that it's snowing?
Did I mention that it's going to snow a lot more tonight then this weekend?

Really. This is all I got. For now.

Maybe I was wrong...gasp!

So in my moments of gloom and doom this week I went back on the thousands of pictures of my children that I have taken over a period of their short lives and every once in a while I see one that I missed before, that for some reason, although adorable of course the first time I saw it or the thirty third time, stood out this time and had a different feel about it.

Obviously this one speaks volumes that occasionally calmness and quit times (well this is just short of a miracle in its self) can happen in our house...humm I'm just sort of wondering where Anneleise is?

Seriously a home with multiples never gets three children setting down at one time then to get a picture of it too!

*FYI: no child was hurt, threatened, restrained or even hypnotized in the making of this photo!

Lets hope and pray...

That just like this picture everything is smooth sailing...

*FYI I did not dress her this is one of "Sarah Anneleise Klaire's favoritest outfits" gulp, says Anneleise.

Stephen King...who are you?

Well we got two dates for testing. Febuary 16th at 9:45 am or tomorrow at 9:00 am.

Since I am going up the wall I choose the one for in the morning, the bad weather isn't supposed to start until noonish~ then I caught the latest weather up date and I here...

"Folks It's going to be the storm of the Century so to speak..." and they expect it to start around 8 ish here in our area with ice first then saying we should see 12 inches in the next 6 hours...

So who is Stephen King, a prophet, a poet, a novelist or someone who just happens to write a good movie with quirky titles that haunt you forever...

errrrg.

Okay God I get it, you don't take threaten lightly...so would you go for a bribe? maybe a homemade angel food cake by chance? After all we are getting enough snow I should have time and since I can't sleep while I am awaiting the impending doom that has been looming over my head for the last month, it is the least I can do.

Because things can get worse...

We are waiting on the appointment to take Anneleise for testing...

Because one child with a fatal birth defect and some, stupid country OB's who kept telling I would grow out of this "miscarriage deal" 13 times, Atty's extensive (really horrific) ortho surgery this summer due to malformed legs/knees in utero, Anneleise whole life since birth complications from a phlagiocephally and torticollis left untreated too long (idiots) hasn't been enough to test me!

Hold on for this.

Cystic fibrosis.

Yeah, I am falling apart at the seams right now too.

They haven't done the sweat test yet but there are other tests since she has been sick that are all pointing there. Can't decide which evil I want (because she will have to have something, that is how our lives are here in Whitney's World) the CF that she is leaning towards or the small cell cancer which although is slow is usually fatal by the time it is detected.

I'm sorry did someone just suck all the air out of the room.

I would ask for prayers, but really I'm sure this whole mess (my preferred choice of words) has already been decided and one again I'm just going to survive and take what is been dealt, and I say dealt because I'm sure I never stood in the line for "continuous heartache", well then of course since I was not looking for it and it was beside the "wants a simple life, left alone" life and when I dropped my keys I fell into it....hum that must be what happen. Well as I siad we'll get through this too...

and another one of my children...might not.

*************INSERT FOUL MOUTH, HOW YOU REALLY FEEL HERE ****************

Crap, shit, damn and lets just throw a fuck fuck fuck in there too.